Care4Rare Media

Check out the articles, interviews, videos, and podcasts Care4Rare has been featured in!

Interested in featuring Care4Rare in media, podcasts, articles, etc.? Contact Elisabeth, esoubry@cheo.on.ca.

 

Care4Rare on Radio Active with Jessica Ng, Min Dhariwal

November 2022

We joined Radio Active to talk about how Care4Rare is providing help to children with rare conditions and their families.

Link to Segment

Dr. Kym Boycott, C4R Lab - Picture by Andre Coutu, Media House

Care4Rare Canada: Outcomes from a Decade of Network Science for Rare Disease Gene Discovery

November 2022

Care4Rare celebrates a decade of life-changing discoveries and innovations in clinical genetics through a new publication in The American Journal of Human Genetics.

Link to Release

uOttawa Faculty of Medicine: This is Ottawa's Academic Health Network

July 2022

To promote Ottawa as a leading city in healthcare research, uOttawa’s Faculty of Medicine teamed up with Care4Rare to be a part of their commercial. You’ll see our very own Dr. Kym Boycott, Alexanne Cuillerier, and Matthew Osmond throughout!

Link to Video

CHEO Telethon 2022 Segment

June 2022

Dr. Kym Boycott and Alexanne Cuillerier give Kid Reporter, Lincoln, a tour of our lab. Lincoln asks Dr. Boycott questions about what we do!

Link to video

Why Should We Care4Rare?

May 2022

University of Toronto Masters of Medical Genetics students interviewed Dr. Kym Boycott on what Care4Rare is all about.

Link to interview

Your community voice (stittsville & Richmond): think small, dna holds the key

March 2022

Research Assistant, Hannah Driver gives an interview to the local news, explaining what Care4Rare does and her role with us!

Link to article

PACBIO: An interview with Care4Rare – how HiFi sequencing is being used to improve our understanding of rare disease

February 2022

In honor of Rare Disease Day, our partner PacBio shared an interview with Dr. Kym Boycott and featured Care4Rare in their blog.

Read the blog
 

Genetics in medicine: What is the user experience with Matchmaker Exchange?

February 2022

Dr. Kym Boycott talks about the Matchmaker Exchange’s user experience on the Genetics in Medicine GenePod podcast.

Link to podcast
 

Regroupement quebecois des maladies orphelines: Care4rare exome sequencing Zebinaire

February 2022

Dr. Kristin Kernohan presented a webinar for RQMO about Care4Rare and our pan-Canadian exome sequencing project.

Link to video

PacBio and Care4Rare Consortium Collaborate on Rare Disease Research Study

January 2022

PacBio announces its HI-FI sequencing partnership with Care4Rare Canada.

Link to the announcement
 

Betakit: GENE42, CARE4RARE LAUNCH CANADA’S FIRST NATIONAL RARE DISEASE RESEARCH PLATFORM

March 2019

Care4Rare announces its new rare disease research platform Genomics4RD.

Link to the article

Vector Institute’s Friday Seminars Series Presents Michael Brudno

2019

Dr. Michael Brudno talks about how Computational Medicine is used to help diagnose rare disease patients.

Link to video

Ottawa citizen: CHEO’s new centre for genomic innovation

February 2019

CHEO holds a press conference to announce its new Centre for Genomic Innovation, which includes Care4Rare.

Link to article
 

CTV ottawa: Care4Rare

December 2018

CTV Ottawa features Care4Rare and our participant Eli to discuss our research’s impact on children in the Ottawa community.

Learn more
 

CTV ottawa: Care4Rare

March 2018

CTV Ottawa introduces Care4Rare and our work to the local community.

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Ga4Gh: Justin’s odyssey

October 2017

Meet Justin, one of our participants! Through Care4Rare and the Matchmaker Exchange, hear his story of how he was able to get a diagnosis after years of searching.

Learn more
 

ga4gh: Matchmaker exchange the next generation

December 2016

Dr. Kym Boycott talks about how the MatchMaker Exchange has helped us solve rare diseases.

Learn more
 

canada foundation for innovation: Research builds my children’s community

September 2016

Our participants talk about how the work of Care4Rare has helped them and the importance of a diagnosis.

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Cheo: researching rare diseases in children

February 2016

Abby’s mom talks about how Care4Rare has helped find Abby a diagnosis.

Learn more
 

University of calgary peer review podcast: how kym boycott became addicted to discovering rare diseases

December 2015

Dr. Kym Boycott is featured on the UCalgary Peer Review Podcast, discussing how she became interested in rare diseases and how she discovers new ones.

Link to podcast

Canada foundation for innovation: Seeking a rapid cure for rare disease

June 2016

Dr. Kym Boycott discusses how Care4Rare finds patients a diagnosis.

Learn more
 

the company of biologists disease models & mechanisms: Looking for a needle in a haystack – tackling rare diseases: an interview with Kym Boycott

May 2015

Disease Models & Mechanisms interviews Dr. Kym Boycott.

Link to interview